I'm almost 2 weeks into the clinical trial. The side effects have been mostly manageable with a couple of exceptions. During the first week I had a couple of times when I vomited. The first instance was pretty tough, the second a little less. It had to do with my diet and eating times and the time I took the pills.
This week has gone better so far. I met with Trial Coordinator and the Hematology nurse on Monday at Mayo and went over my condition and side effects with both of them. They suggested some options for management.
The biggest affect the drug has had on me is fatigue. Along with the fatigue comes headaches for which I don't take medication to alleviate. The drugs that work on a headache contain naproxen or aspirin, both of which suppress platelet replenishment. Not good. Oh and one of the symptoms of low platelets is headaches. Go figure.
So, I am trying to work stuff out each day to get by. So far, so good I guess.
That's it from me,