Tuesday, July 11, 2017

Second Scan in 2 Weeks and a little scare

So... I have been having some trouble with pains in my chest and stomach. During my appointment at Mayo on Monday I let my Hematology Nurse know that I was feeling more pressure in my chest. She scheduled an X-Ray for me that afternoon.

Vicki and I left Mayo a little after 4:00 and got home around 10 after 5. By the time we looked at our phones we both had messages from Kelly (the Hemo Nurse). Something had showed up at the edge of the X-Ray in my abdomen. A little after this a scheduler called and set me up for a CT Scan this morning.

By 2:30 today Kelly called and told me the scan was good. It seems that the X-Ray had showed what appeared to be an air pocket in my abdomen, which would indicate a perforated intestine or colon. Luckily that was not the case. I appreciate the thoroughness of the Mayo folks in spite of the scare. These people don't mess around. I feel like they are looking after me as best they can.

Another bit of good news came out of this as well. The fluid around my lungs has decreased.

I am still struggling with managing side effects, but I have just another week and then a week off. I am hopeful it will get better.

Hang in there,

RT

Thursday, July 6, 2017

The Clinical Trial

I'm almost 2 weeks into the clinical trial. The side effects have been mostly manageable with a couple of exceptions. During the first week I had a couple of times when I vomited. The first instance was pretty tough, the second a little less. It had to do with my diet and eating times and the time I took the pills.

This week has gone better so far. I met with Trial Coordinator and the Hematology nurse on Monday at Mayo and went over my condition and side effects with both of them. They suggested some options for management. 

The biggest affect the drug has had on me is fatigue. Along with the fatigue comes headaches for which I don't take medication to alleviate. The drugs that work on a headache contain naproxen or aspirin, both of which suppress platelet replenishment. Not good. Oh and one of the symptoms of low platelets is headaches. Go figure. 

So, I am trying to work stuff out each day to get by. So far, so good I guess.

That's it from me,

RT